EPDA
The European Parkinson's Disease Association (EPDA) has provided a forum to work in partnership with European PD and other neurological organisations, and the World Health Organisation. This partnership has enabled the development of research projects in to quality of life issues and conferences for multidisciplinary teams and people with Parkinson's. These are funded by external sources such as the European Union and the pharmaceutical industry. Some projects are piloted in the UK and are transferable to other countries and others are developed as a result of partnership with various countries throughout the world.

Projects piloted in the UK:
  • Evaluation of Physical therapies
  • Economic and Emotional Cost of Care
  • Young People with Parkinson's (What is needed to improve quality of life)
  • Parkinson's CD-ROM and Selfcare Manual

    Projects in collaboration with other countries:
  • Centres of Excellence
  • Dyskinesias and their impact upon quality of life
  • Global Parkinson's Disease Survey (GPDS)
  • Quality of Life Art Competition
  • INFOPARK
  • European and USA Medication Leaflet
  • Participation in Life Survey
  • PD Life (Drug Profiling)
  • PD MED
  • Young People with Parkinson's (What is needed to improve quality of life)

    Conferences - Multidisciplinary:
  • Glasgow - 1994
  • Stockholm - 1996
  • Barcelona - 1998
  • Kracow - 1999
  • Prague - 1999
  • Vienna - 2000
  • Kiev - 2001

    Conferences - Euroyap meetings (People with Parkinson's and their relatives):
  • UK - 1994
  • Germanu - 1996
  • Denmark - 1997
  • Holland - 1999
  • UK - 2001
  • France - 2003

    The EPDA is a non-political, religiously neutral, and non-profit making, organisation concerned only with the health and welfare of people living with Parkinson's disease and their families.

    Its aim is to:
    Promote international understanding of Parkinsons's disease, enabling people living with Parkinson's and their families to draw on best caring practice world-wide, to access the latest medical and surgical advice and thus make informed choices to achieve the best quality of life possible.

    To this end, the EPDA seeks to:
  • Establish the extent of Parkinson's disease in Europe
  • Provide and continually update medical and caring best practice
  • Make this information readily available to patients and carers of all walks of life throughout Europe
  • Offer people with Parkinson's and their families, through information technology and international networking, a community of information and assistance
  • Promote and encourage co-operations between scientific and other professional groups enabling advancement of health
  • Motivate, promote and support new and existing national organisations to provide optimum care and rehabilitation
  • Promote co-operation and exchange of experiences between the member associations

    Administration Board:
    President: Mary G. Baker - UK
    Vice President: Irena Rektorova - Czech Republic
    Secretary: Louise van der Valk - Netherlands
    Treasurer: Raphael Medan - Israel
    Member: Peter Hoogendoorn - Netherlands

    Liaison/Project Manager:Lizzie Graham - UK

    Membership:
    Austrian			Parkinson Selbsthilfe Oesterreich
Belgium			Association Parkinson Belge
Belgium			Vlaamse Vereniging Parkinson
Bulgaria			Fondazia Parkinsonism
Czech Republic			Parkinson's Disease Society
Cyprus				Parkinson's Disease Association
Denmark			Dansk Parkinson Forening
Estonia				Estonian Parkinson's Society
Faeroe Islands			Parkinsonfelagid
Finland				Suomen Parkinson-Litto Ry
France				Fédération des Groupements de Parkinsoniens
Germany			Forderverein Parkinson e.V.
Iceland				Parkinson Association in Iceland
Ireland				Parkinson's Association of Ireland
Israel				Parkinson Group
Italy				Azione Parkinson
Italy				Parkinson Italia
Lithuania			huanian Parkinson's Society
Luxembourg			Association Luxembourgeoise de la Maladie de Parkinson
Netherlands			Parkinson Patiënten Vereniging
Norway			Norges Parkinsonforbund
Poland				Kracow Parkinson's Disease Association
Poland				Stow, Choroby Parkinsona
Portugal			Associacao Portugesa de Doentes de Parkinson's
Slovenia			Parkinson's Disease Society of Slovenia
Spain				Federacion Española Parkinson
Sweden				The Swedish Association of Neurologically Disabled
Sweden				The Swedish Parkinson's Disease Association
Switzerland			Schweizerische Parkinsonvereinigung
Turkey				Parkinson's Disease Society
Ukraine			The Association for Parkinsonian Disables
United Kingdom		Parkinson's Disease Society of the United Kingdom
Yugoslavia			Serbian association against Parkinson's Disease

    Associate members:
    Atlantic-Euro-Mediterranean Academy of Medical Sciences
    Division of Movement Disorders of the Russian Society of Neurologists
    European Federation of Neurological Societies (EFNS)
    European Federation of Neurological Associations (EFNA)
    Movement Disorder Society (MDS)
    National Tremor foundation, UK

    • The Parkinson Self-Care Manual and CD-ROM are published by the September Foundation, Amsterdam - info@stichtingseptember.nl.
    Site & CMS by Driebit, Amsterdam - www.driebit.com